I was not a direct victim of autism but I felt very victimized by having to live in it's periphery. It was hard enough for me living alongside these symptoms (in varying degrees) much less for Sean having to live with these symptoms:
- Lack of or delay in spoken language
- Repetitive use of language and/or/motor mannerisms (hand-flapping, twirling objects)
- Little or no eye contact
- Lack of interest in peer relationships
- Lack of spontaneous or make-believe play
- Persistent fixation on parts of objects
- Difficulty with transitioning
I watched the frustration build in Sean with very little skills to help him. He couldn't speak. He didn't have a definitive way to communicate so all that was left to do was throw down. Sylvia introduced new ways for Sean to communicate. He began signing a little but it wasn't used very often because they were trying to get him to speak. They used Board Maker picture symbols to make picture schedules to help with transitioning. The schedule is designed to show him what is coming next much like the one below:
FINISHED POCKET
As each activity was carried out, Sean would remove the velcro'd symbol and put it in the "Finished" pocket. Then he would move the next symbol to the top. The schedule could be as detailed as it needed to be. I was amazed at how this worked. He was a long way from being liberated but at least he knew where he was going one schedule at a time. With the sign language and symbols, the days at school were more calm. I'm not sure why we didn't use the picture schedule system at home. It sure would have helped.
Sean was happier. He had new skills to help him communicate. He still stimmed quite a bit by trickling linear things like Q-tips in front of his face and watching them fall. His dad would throw them up through the ceiling fan. As they scattered, Sean (in a crouched position) immediately collected them in a matter of seconds. I remember the day I introduced him to Q-tips. I was so frustrated I opened up the box I had just purchased and threw a wad of them on the floor. He was satisfied. Stimming was something the school wanted Sean to do very little so they used it as a reward. At home, my motto was:
"Do it, do it, do it till you're satisfied, whatever it is!"
See, even in your frustration you manage to see things from Sean's point of view...to realize how frustrated he was. Not everyone would do this.
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